Supporting the fight against rare diseases

Supporting the fight against rare diseases

The sixth “Thanks to you, they’re better off” solidarity projects competition was a big success, drawing double the number of entries of last year. The event is held on Fluidra Day and this year received entries from nine different countries: Spain, Brazil, UK, France, Netherlands, Thailand, Mexico, India, and the US.

As you know, the competition awarded three projects entered by Fluidra group employees. The panel of judges had to choose the winning entries from among those that received the most votes, for a €3,000 donation. The chosen projects were:

  • “Bringing the World’s Only GSD Research Team into Contact with Patients” (AEEG)
  • “Comprehensive Care for Cerebral Palsy Patients” (Cantinho do Céu)
  • “Providing Funds for Research into Spinal Muscular Atrophy” (ForçAME)

As all three were wonderful ideas clearly warranting the prize for their social purpose and humane character, Living Fluidra would like to explain them in more detail. This will let you know more about these winning initiatives and the aim of the organizations set to receive the prize.

The first Fluidra Day winning solidarity project we will explain is the one developed by the Spanish Association of GSD Patients (AEEG), entered by Itziar Martínez from Manufacturas Gre.

Blanca González Martínez is a four-year-old girl with a rare disease called Glycogen Storage Disease Type III which causes liver, muscle, and heart problems. The disease gives her hypoglycemia as she can’t tolerate blood glucose and must eat carbohydrates and protein every three hours for her body to function properly (day and night), meaning she has never slept through the night, or her parents either. (Itziar Martínez Zuazo)

The €3,000 to be awarded to the AEEG will be allocated to bringing a medical team from the University of Connecticut to the GSD medical congress being prepared for October. The team, led by Dr. David Weinstein, is the only one dedicated to studying glycose storage disorder and has treated over 500 patients from 45 different countries. The team’s attendance at the congress will be a unique opportunity to assess and evaluate patients in Spain, where around 60 cases have been diagnosed.

Itziar Martínez also picks up an Amazon gift voucher worth €300 for having proposed one of the winning entries.

Fluidra thanks everybody for taking part!

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